Paralyzed

Pain.

It’s all I feel anymore.

Sharp needles hitting my nerves, sending waves of pain throughout my body.

The pain is the first symptom…

Dizziness… confusion… nausea… can’t move stiff joints and muscles…loss of appitite…dry mouth… disinterest…deeper depression…

Rheumatoid arthritis, RA, is the culprit. There have been more than one day that I’ve called out from work, because I could barely move. It hurts just to write this all down, because my hands and arms are the most affected from this disease.

Yes! It is an autoimmune disease and it’s a pain. I’m trying to make life easier for myself but like I said in my last post, I work so much. Most of the time I work 7 days a week.

Pulsing…my hands are radiating dull, achy pain. It’s time to stop.

~Waterbug24~

Monday Madness

Good afternoon everyone! The last week has been crazy with today topping it off at work. I’m finally getting over my head and chest cold and feeling better. Though I did have a break down on Saturday night after missing a dose of my medication, but I missed it due to spending the night with my cousin. We drank homemade margaritas and had a great girls night.

I got a new job at a local preschool as an assistant teacher!!! I start February 5th and I’m really excited. But I do feel guilty about stepping down from my PIC position at Fred Meyers, because I feel like I’m letting my manager down. At the same time I know I shouldn’t feel like that, because it’s my life and a step in the direction of where I’d like to see myself one day as a career.

Also I’ve created and have business cards and flyers for my beaded earrings! It’s a step in the right direction. So I’ll post a picture of both once they come in.

Well I have to get back to work!

Love you all! ­čśś

~Waterbug24~

 

Lazy Day

This year is already flying! My goals for the year are:

1: Do what I want or need to do to make myself happy

With this I am taking days for myself, I even dyed my hair red and it looks great. Applying to jobs that I’d rather be at, like being a teacher assistant for a preschool; btw the kids there are adorable. I’m pushing myself with beading when my body allows it as well as making business cards for it. Also I will be taking a class at my Alum College, APU. Yay for learning!

2: Pay off my debt

This started off with H and R block taxes (I hate them so much) and the IRS. And my boyfriend’s debt is almost gone too. I may or may not apply for another deferment for my student loans, but we shall see.

3: Heal my body and soul

Between my conventional doctors and my new traditional healers, I’m hoping to find myself in a better mental state.

4: Write more letters or post cards

That and write more today bits here!

Today I am recovering from a cold. Been working non stop and today is .y first day off that I don’t have to leave the house. I’ve been coughing and sneezing and hard of hearing due to the congestion. So have a great Tuesday Everyone!

 

~Waterbug24~

2017

My mind keeps jumping from topic to topic and my emotions are the same. This year has been a rollercoaster to say the least. From new meds and a new job to taking an out of state trip with my boyfriend…my brain feels like goop.

I’m happier with myself, because I’ve been taking care of myself mentally and physically. Though the last two months I’ve been terrible with the gym, but oh well. Taking depression meds has helped bring me up to breathe and the RA meds are helping my aching joints. The worst thing though is that I’m not satisfied with myself. I want to be happy without the meds and have a job in which I’m happy with. Sure my current job is giving me manager experience, but I’m being run down already with it. I’ll get through this funk with work…at least my coworkers appreciate me.

The last thing on my mind for this year is children. I so want to be a mother. I’m envious of others who are pregnant or just popping them out (my cousin with her cute little twins). My maternal clock is kicking my behind.

New years is just around the corner. Have a good one! And thank you to everyone for this first year up as Waterbug Blog!

~Waterbug24~

 

Holiday madness

Sincey boyfriend and I had our week long trip to Washington state, life has been a blur. Between it finally snowing, doctor visits and long hours at work I haven’t had the will nor energy to really write.

The dark here in Alaska is sometimes unreal. At 5pm it looks to be closer to midnight, especially if it hasn’t snowed. The worst part of the darkness is when you don’t or can’t take the time to get outside or be active. With my depression I have to take at least 1000mg of vitamin D supplements daily to help my body manage through winter or tan (I’d rather not though). On days off I try to take walks in my neighborhood. Winter here is best when it’s snowing! The darkness isn’t as bad and snowmen are possible.

At work I’ve taken on more and only need one technical training night to know how to close the store. Working overtime and proving myself has been stressful, but I am becoming more comfortable in the position. It also helps that I’ll get a nice raise and it’ll look good on my resume. Though I’ve been taking my days off and not staying so late in order to keep my sanity.

My sanity may have to hold off a bit longer, due to Thanksgiving in a few days followed by Black Friday, Christmas, and News Years right after. This year I happily have Thanksgiving off with my boyfriend and I spending it with my Cousin and his family.

My beading is coming along too. I’ve been trying new styles and started selling earrings at my colleges bookstore (I’ve sold one so far). It’s exciting.

Well I hope you all have a great night and Happy Thanksgiving!

~waterbug24~

Moving Forward

“Smooth seas never made skilled sailors.” -Franklin D. Roosevelt ┬á

The quote of the day (which I need to make sure I keep doing, sorry!) is one of my favorites that I think of often especially the last couple months. ┬áPeople may say, “Oh wouldn’t a nice day bring about experience too?!”, or “Not true! I’m still on the struggle bus!”. I see both types of people in my life, but what they fail to see a storm may be coming or their storm will pass. I’ve gotten to that point where I listen to my friends, from both sides, and don’t speak about my issues or don’t give advice, because neither listens to me nor helps me when I need it most. That is life, and why I don’t feel bad when I need to let people go or change the friendship to have more space.


I’ve written many times about my health, but in the mess I forgot to say that my doctors gave me the wrong┬ádiagnoses about Lupus. It happens though and many symptoms of Lupus are shared with other autoimmune disorders. After I changed specialists, we sat down and talked for an hour about me and my health. We started at my childhood issues and pains to now. What she figures (since I can not test for it at my age) is that I had┬ájuvenile rheumatoid arthritis (JRA), which could have lead to my aggressive eye issues. The medication I was on when I first had eye issues were the same I would have been put on for JRA, but she figures the issues were too aggressive for them. After talking about my list of issues and locations of pain, she concluded that I have┬áfibromyalgia. We talked about the symptoms and the connections through my life, it finally made sense!

I do wonder if the doctors could’ve re-tested me for JRA (they did at first, but it came up negative) after my symptoms and medication wasn’t working, if they could’ve saved my eye, or if it was meant to be…


My financial troubles will go away and come back I know, but it does take a toll on my health worrying so much about bills. I wish my boyfriend would just get that magical call back that he got the job, but its hard finding stable work in Alaska that you can enjoy.

Good news though, I am being trained to be an assistant manager at work and today I am being given the chance to run the show (even if just for a little bit). I’m nervous, but excited at the same time, because this is the first job to follow through after they said they wanted to make me a manager. This is the one position and experience I need on my resume to show future jobs that I can handle it.

I’m gonna finish off here today, because I need to eat something to take with my meds as well as prepare for the day!

~Waterbug24~

A Good Day

Since last Monday be I’ve had a few really bad days, where my whole body hurts and swollen joints, but a few good ones have slipped in. The worst is when my hands are sore and swollen, makes it hard to do what needs to be done as well as do what I would like to do (beading). Though today was one of my good days. After work I had enough energy to walk more rather than sit and wait. The weather helped too; not too hot and not a lot of pollen.

One a sad, but happy ending my coffee pot died on me on Sunday morning ­čśž but I was able to buy a new one plus a coffee grinder for the price of one ­čśä. It’s a red Black and Decker 12 cup; I go between Black & Decker and Mr.Coffee for my at home coffee needs. Much love for those two brands.

Also with my extra energy today I made homemade Mac and Cheese with salad. The cheese sauce was made with whole milk, a spoonful of flour, a slice of butter, about 2 cups pre-shredded sharp cheddar, a couple vigorous shakes of black pepper, and a dash of salt. I also added a mixture of meatless sausage, one chopped carrot, two green onions, two cloves of garlic, one sarano pepper, three white mushrooms, and one can of white whole kernal corn. After layering my noodles, mixture and sauce I baked for ten minutes with a sprinkle of the cheddar on top. So good! I love baking the Mac and Cheese for 5-10 minutes to melt everything together. To top it off I got Ben and Jerry’s ice cream ­čĺť

Well I’m getting tired. I hope you all have a great week!

~Waterbug23~