“Smooth seas never made skilled sailors.” -Franklin D. Roosevelt
The quote of the day (which I need to make sure I keep doing, sorry!) is one of my favorites that I think of often especially the last couple months. People may say, “Oh wouldn’t a nice day bring about experience too?!”, or “Not true! I’m still on the struggle bus!”. I see both types of people in my life, but what they fail to see a storm may be coming or their storm will pass. I’ve gotten to that point where I listen to my friends, from both sides, and don’t speak about my issues or don’t give advice, because neither listens to me nor helps me when I need it most. That is life, and why I don’t feel bad when I need to let people go or change the friendship to have more space.
I’ve written many times about my health, but in the mess I forgot to say that my doctors gave me the wrong diagnoses about Lupus. It happens though and many symptoms of Lupus are shared with other autoimmune disorders. After I changed specialists, we sat down and talked for an hour about me and my health. We started at my childhood issues and pains to now. What she figures (since I can not test for it at my age) is that I had juvenile rheumatoid arthritis (JRA), which could have lead to my aggressive eye issues. The medication I was on when I first had eye issues were the same I would have been put on for JRA, but she figures the issues were too aggressive for them. After talking about my list of issues and locations of pain, she concluded that I have fibromyalgia. We talked about the symptoms and the connections through my life, it finally made sense!
I do wonder if the doctors could’ve re-tested me for JRA (they did at first, but it came up negative) after my symptoms and medication wasn’t working, if they could’ve saved my eye, or if it was meant to be…
My financial troubles will go away and come back I know, but it does take a toll on my health worrying so much about bills. I wish my boyfriend would just get that magical call back that he got the job, but its hard finding stable work in Alaska that you can enjoy.
Good news though, I am being trained to be an assistant manager at work and today I am being given the chance to run the show (even if just for a little bit). I’m nervous, but excited at the same time, because this is the first job to follow through after they said they wanted to make me a manager. This is the one position and experience I need on my resume to show future jobs that I can handle it.
I’m gonna finish off here today, because I need to eat something to take with my meds as well as prepare for the day!