Since last Monday be I’ve had a few really bad days, where my whole body hurts and swollen joints, but a few good ones have slipped in. The worst is when my hands are sore and swollen, makes it hard to do what needs to be done as well as do what I would like to do (beading). Though today was one of my good days. After work I had enough energy to walk more rather than sit and wait. The weather helped too; not too hot and not a lot of pollen.
One a sad, but happy ending my coffee pot died on me on Sunday morning 😧 but I was able to buy a new one plus a coffee grinder for the price of one 😄. It’s a red Black and Decker 12 cup; I go between Black & Decker and Mr.Coffee for my at home coffee needs. Much love for those two brands.
Also with my extra energy today I made homemade Mac and Cheese with salad. The cheese sauce was made with whole milk, a spoonful of flour, a slice of butter, about 2 cups pre-shredded sharp cheddar, a couple vigorous shakes of black pepper, and a dash of salt. I also added a mixture of meatless sausage, one chopped carrot, two green onions, two cloves of garlic, one sarano pepper, three white mushrooms, and one can of white whole kernal corn. After layering my noodles, mixture and sauce I baked for ten minutes with a sprinkle of the cheddar on top. So good! I love baking the Mac and Cheese for 5-10 minutes to melt everything together. To top it off I got Ben and Jerry’s ice cream 💜
Well I’m getting tired. I hope you all have a great week!
Last week was one of my best weeks in a long while. Mostly because I wasn’t working both of my jobs almost every day; I actually got to relax!
On Friday I had a doctor’s appointment to talk about changing my birth control (cause you know, the pill likes to f**k up your system) as well as talk about what tests we could start next for figuring out my health puzzle. Anyways, as I sat there talking about my symptoms for the umpteenth time, my doctor is looking through my previous tests. Out of the blue he brings up my autoimmune disease positive test that my previous (unhelpful) doctor didn’t do anything about even after pushing for more testing; the oh we’ll wait and see and do more testing later shit. I was taken back, because he said you should talk with the specialist about your Lupus. I didn’t know what to say to that, because my previous doctors never did anything or told me anything else other than I had a positive ANA and autoimmune tests. I told him all that and he was concerned (like he and other doctors should). You see, my primary care set-up an online system where patients can look at their health records, make/drop appointments, and among other great things, but I only recently jumped on-board, because it became necessary. I wish now that I had been told of my positive tests for Lupus sooner, but at least now I’ll be able to crack my puzzle before it gets worse. Now I have an appointment later this week with my specialist to talk about doing more tests and receiving treatment.
The bad thing about Lupus is that all the symptoms linked to the autoimmune disease are all over the place; as in they could be symptoms to several disorders/sicknesses. Since I had the morning off I went through my online health record and wrote down all the abnormal tests. Each abnormal test was linked to autoimmune disorders, specially Lupus. Those plus my list of symptoms (that keep getting worse) are pointing towards Lupus. But still with all that I have looked at, a talk with my specialist is needed plus new tests.
On the other hand, in order to start taking back my health at the end of July I am leaving my job at Starbucks. So I am frantically trying to finish a few more pairs of earrings for my co-workers. I have about three more pairs. And for the males and a few females that I know don’t wear earrings, I will be bringing in homemade foods for them. Also, to feel better I have been trying to put make-up before work, at least lipstick, because even just that little bit does makes a difference.
Whelp, I am growing tired. I’m going to log off and rest before work. Have a good Monday everyone!
Jeez I am a terrible blogger. It’s been awhile since I’ve felt like writing.; it happens to the best though. The last two months have been draining. Between work, personal time, and making sure my boyfriend and I get our time I haven’t felt like writing. At one point my depression was crippling, but I am slowly digging my way out.
To tell you guys the truth, I don’t even feel like writing today; my arms feel like lead. Over the last couple weeks I’ve broken down several times, which put a strain on my relationship and work.
I do have a doctors appointment this Friday. I want to talk with him about testing me for a hormone imbalance. Writing this makes me remember how it felt to push through writing an essay I don’t want to write or think about anymore.
One thing is for certain, I’m leaving my job at Starbucks at the end of July. I almost walked out after my manager made me cry and feel like my coworkers hated me. I’ve left jobs before due to bad managers, but she is both a terrible manager as well as a not so great human too. Which is sad, because I enjoy my time at my store usually and love my coworkers. She just makes it unhappy for not just myself, but others as well.
Maybe I’ll write more as the week progresses…I do have some free time later in the week. On another note, I’ve been re-reading through the Lord Of The Rings and playing Stardew Valley on the PlayStation. Both have been good for me.
I’m gonna go for now though.